I will be writing about the joys and challenges of parenting a child with a chronic and progressive disability. If not for my son, I would have never known how often children and adults with disabilities are discriminated against and not truly valued in our society and world. I have never been good with injustice.
Fixer Upper Part Two is a cautionary blog story about fixer-uppers, home ownership, missed closing dates, red-tagged appliances, hiring an attorney, and stress. Fixer Upper NDE (Near Divorce Experience) is part one. If this is your first visit to my website, you can read that… Read More »Fixer Upper Part Two
Near Divorce Experience You might not be familiar with the acronym NDE (Near Death Experience). In a previous post, Entrances And Exits, The Fun Fuller Family began looking for a new home. But in this blog story about buying a fixer-upper house with a baby,… Read More »Fixer Upper NDE
Imagine your perfectly healthy child (or grandchild) is four years old. On Friday, you pick them up from childcare, and they complain about a stiff neck. That fateful day began our journey with sorrow management. They wake up several times during the night. Saturday you… Read More »Sorrow Management
As a mother of a child with Duchenne Muscular Dystrophy and an advocate for human beings, with a specialty in physical disability and incurable disease, I quickly saw the wisdom in Label Jars, Not People. We should celebrate diversity and equality. Please let me continue… Read More »Label Jars, Not People
My son lived with a physical disability and an incurable disease. He taught me how to celebrate life with a tear and a smile on our journey. In my teens, I dreamed about making a living as a poet. During a visit to the library,… Read More »A Tear And A Smile